The first weeks
A diagnosis can bring grief and fear, and for some families, relief at finally having an answer. All of these reactions are normal. You do not need to do everything at once, and many people live well for years after an early diagnosis.
Treatment decisions
Ask your provider whether you are a candidate for Leqembi or Kisunla, which other medications may help with symptoms, and what the follow-up plan looks like. Write your questions down before each visit, and bring a family member to take notes.
Ask about clinical trials as well. Research studies can offer access to new treatments and close monitoring.
Legal and financial planning
Put legal documents in place early, while the person with the diagnosis can take part in every decision. In Florida, that usually means:
- A durable power of attorney, which names someone to handle financial and legal matters
- A designation of health care surrogate, which names someone to make medical decisions if you cannot
- A living will, which records your wishes about life-prolonging treatment
- An updated will or trust, and current beneficiaries on accounts and insurance policies
- A HIPAA authorization, so your providers can share information with the people you choose
An elder law attorney can prepare these documents and advise on paying for long-term care. Review bank and credit accounts together as well. Scammers often target people with memory changes, and automatic bill pay and account alerts help prevent problems.
Driving and home safety
Driving deserves an early, honest conversation. A diagnosis does not always mean someone must stop driving right away, and driving ability changes over time. Ask your provider about a formal driving evaluation, and agree as a family on the signs that will mean it is time to stop.
At home, think through medication management, stove and appliance safety, fall risks, and what happens in an emergency. A medical ID bracelet and a phone with location sharing can help if the person gets lost.
Support for the family
Caregivers of people living with dementia may qualify for Medicare's GUIDE program, which offers in-home respite care, a 24/7 support line, care navigation, and caregiver education. Memory Treatment Centers delivers GUIDE with Craniometrix. Learn about the GUIDE program.
The Alzheimer's Association runs a free 24/7 Helpline at 800-272-3900, along with local support groups for people living with the disease and for caregivers. Our guide to caring for yourself as a caregiver covers the family side in more detail.
This guide is for education and is not medical advice. Treatment decisions are made with your provider after a full evaluation.